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Patient engagement in medical publications: a journey from ‘why’ to ‘how’


KEY TAKEAWAYS

  • Patient roles are shifting from research subjects to publication partners, contributing lived experience to improve the accuracy and relevance of medical research communications.
  • ISMPP has played a leading role in patient engagement initiatives, establishing the Patient Engagement Task Force to embed patient involvement across the publishing ecosystem.
  • Practical tools and resources, such as a patient-centred lexicon and impact metrics tools, are supporting effective collaboration and meaningful engagement with patient partners.
  • The field is moving toward deeper, more equitable collaboration, with growing opportunities for patients to influence authorship, publication strategy, research leadership, and the broader culture of medical publishing.


How would you describe patient engagement in your organisation today?

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