Patient engagement in medical publications: a journey from ‘why’ to ‘how’
KEY TAKEAWAYS
- Patient roles are shifting from research subjects to publication partners, contributing lived experience to improve the accuracy and relevance of medical research communications.
- ISMPP has played a leading role in patient engagement initiatives, establishing the Patient Engagement Task Force to embed patient involvement across the publishing ecosystem.
- Practical tools and resources, such as a patient-centred lexicon and impact metrics tools, are supporting effective collaboration and meaningful engagement with patient partners.
- The field is moving toward deeper, more equitable collaboration, with growing opportunities for patients to influence authorship, publication strategy, research leadership, and the broader culture of medical publishing.

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